Patients Association

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There is no global CAA patient association yet. However, the carriers of the hereditary Dutch CAA variant have joined in the HCHWA-D Association:

You can contact the telephone consultation (+31 (0)622062560 ) of the HCHWA-d Care Desk every Wednesday morning from 9:30 am to 12:00 pm. This Care Desk advises you on finding the right help/support and helps you along the right path.

You can also email your questions to the Care Desk. The email is checked daily:

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